Comments on: My Methotrexate Journey – Weeks 4 and 5 http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/ A new voyage ... life with Rheumatoid Arthritis Mon, 18 Mar 2013 19:34:36 +0000 hourly 1 http://wordpress.com/ By: thislusciousra http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/#comment-114 Sat, 19 May 2012 00:40:03 +0000 http://thislusciousra.wordpress.com/?p=147#comment-114 Niomi – thanks for posting! I’m glad my blog helps you feel less alone. I know all the blogs I fund helped me! As for MTX, after almost two years the downsides are pretty minimal. I’m sure it’s part of why I feel better. Hope you will improve too!

]]> By: Niomi http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/#comment-113 Fri, 18 May 2012 21:04:58 +0000 http://thislusciousra.wordpress.com/?p=147#comment-113 I to have recently started my own personal journey with MTX or as I call it: METHO or My Chemo Meds!
I was looking for information on wether or not MTX can cause disruptions in my menstrual cycle and your blog here is the first thing I found! So of course I begin reading the different posts and am enthused to hear of a journey that is all too familiar. I am a 35 year old mother of 3; who takes care of my quadriplegic father 40+ hours a week.
Sometimes I feel so overwhelmed, i don’t knw if i can make it! I thank you fot shedding some light on such a painful and truly scary disease.

on such a painful and s

]]> By: Niomi http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/#comment-112 Fri, 18 May 2012 20:58:37 +0000 http://thislusciousra.wordpress.com/?p=147#comment-112 I to have recently started my own personal journey with MTX or as I call it: METHO or My Chemo Meds!
I was looking for information on wether or not MTX can cause disruptions in my menstrual cycle and your blog here is the first thing I found! So of course I begin reading the different posts and am enthused to hear of a journey that is all too familiar. I am a 35 year old mother of 3; who takes care of my quadriplegic father 40+ hours a week. Sometimes I

]]> By: Cathy http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/#comment-87 Sat, 09 Apr 2011 15:15:17 +0000 http://thislusciousra.wordpress.com/?p=147#comment-87 All of these stories sounds so much like mine! I was diagnosed back in December with RA and I’m 59. My dad had it had and a really bad case where nothing really worked for him. I seen the pain he went through and not something I wanted but here I am. The stiffness in the mornings before I started treatment was a killer…..I was wheel chair bound so I thought….had a terrible time walking and talk about tired! I could barely blow dry my hair for the shoulders were so inflamed…..but yet the hands and the feet were the worst. I’m taking 6 pills once a week of the Methotrexate…and that is every Wednesday night before bed…..the first time I took these….the next morning waking up was a miracle! Of course I was on Prenasone also but weaning off that now…..down to half a pill of that until gone. I just hope the Methotrexate will still work and I still feel fine once the Prednasone is out of the picture. Right now I feel pretty good….I have some days where all I do is lay around and yes you do know when to call it quits or you will suffer the following day or two….it’s baby steps with me from here on out. Has anyone gotten on disability over this?

]]> By: thislusciousra http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/#comment-52 Tue, 06 Apr 2010 03:22:20 +0000 http://thislusciousra.wordpress.com/?p=147#comment-52 Sue,

Thanks so much for all the detailed thoughts and experiences! I know they will help me, and anyone else who finds this blog. I have been dealing with a bit of a shoulder flare, so haven’t been able to write much. Will post my MTX and other updates soon I hope!

Barbara / RAinPA

]]> By: Sue http://thislusciousra.wordpress.com/2010/02/15/my-methotrexate-journey-weeks-4-and-5/#comment-51 Mon, 05 Apr 2010 22:15:26 +0000 http://thislusciousra.wordpress.com/?p=147#comment-51 Hey, just stumbled across you bolg and thought I would leave a comment about the methotrexate.

I have taken it for many years, both in tablet and as injections. Injections were easy enough but my mind got everything out of context and in the end I went back to tablets.

Currently I am almost pain free from my ra but I tire very easily and my joints in my feet and hands are the worst. Started with it in my 30s and now I am 51.

I hope that one thing here may help you :-)

Work out how long it is from taking your meds until you start to feel bad and tie this starting point in with when you go to bed. That way you should sleep through a fair bit of the low point.

I am rubbish for roughly a day and a half. I take my meds on a Sunday, stay in bed on a monday and manage to start my week on a Tuesday afternoon! I plan my life around this and try to look upon these two days as enforced rest to enable my body to rest and build up some energy! There are anti-sickness medications you can take but as I say I manage mine because it forces me to completely rest.

I take my tablets with bread or cake! Carbs seem to help me considerably, I eat a good solid meal before I take my meds, (17.5mg in one go . . . spreading them out didn’t buy me anything and to some degree spun out the worst side effects), and I eat small “high carb” meals to stave of the nausea for two days after.

Lucozade seems to quench the strange thirst I get after my meds and good old mints help with the tinny taste!

Do take your folic acid? I take it every day, not methotrexate day, as it helps the side effects considerably.

If you take Ibruprofen for the pain see if you can get something to take that will help prevent complications arising in the stomach. Pretty normal practice I think so you may have this anyway.

Hopefully, something in the above may help.

Take care . . . Sue

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