Comments on: So Unsatisfying

By: thislusciousra

thislusciousra — Sun, 19 Sep 2010 16:48:13 +0000

Lana – never thought of just saying I have an autoimmune disease. I guess I thought that would be more confusing for people than just saying I have RA. Do you find that people are more aware of autoimmune diseases as a category?

Thanks!
Barbara

By: lana

lana — Wed, 15 Sep 2010 17:10:52 +0000

Because I am a patient advocate, people ask me questions about RA and actually take the time to listen. There was time, however, that it was not true. But you are best off telling people you have an autoimmune disease that does this and that….When they ask what, you can tell them the name.

By: Wren

Wren — Wed, 15 Sep 2010 03:54:05 +0000

I empathize. It hurts when you tell someone about a condition that affects you every single day in negative ways, from pain and disability to meds that make you feel ill — and they shrug your words off as if they were meaningless.

Happens to me all the time. I wish that people would listen better and be less self-absorbed, but it seems that’s just the way it is. I try not to let it bug me too much. But please know I DO understand. If you were talking to me, I’d be listening and asking questions.

Be well. Look for the gifts.